{"page":"\u003clink rel=\"stylesheet\" href=\"https://lessonplanet.com/assets/packs/css/resources-c03aa079.css\" /\u003e\n\u003clink rel=\"stylesheet\" href=\"https://lessonplanet.com/assets/packs/css/lp_boclips_stylesheets-517835be.css\" media=\"all\" /\u003e\n\u003cdiv data-title='Failure to digitise medical records could be putting lives at risk' data-url='/boclips/videos/6878b3c8efa60ff713f232c2' data-video-url='/boclips/videos/6878b3c8efa60ff713f232c2' id='bo_player_modal'\u003e\n\u003cdiv class='boclips-resource-page modal-dialog panel-container'\u003e\n\u003cdiv class='react-notifications-root'\u003e\u003c/div\u003e\n\u003cdiv class='rp-header'\u003e\n\u003cdiv class='rp-type'\u003e\n\u003ci aria-hidden='true' class='fai fa-regular fa-circle-play'\u003e\u003c/i\u003e\nVideo\n\u003c/div\u003e\n\u003ch1 class='rp-title' id='video-title'\u003e\nFailure to digitise medical records could be putting lives at risk\n\u003c/h1\u003e\n\u003cdiv class='rp-actions'\u003e\n\u003cdiv class='mr-1'\u003e\n\u003ca class=\"btn btn-success\" data-posthog-event=\"Signup: LP Signup Activity\" data-posthog-location=\"body_link_boclips\" data-remote=\"true\" href=\"/subscription/new\"\u003e\u003cspan\u003e\u003cspan\u003eGet Free Access\u003c/span\u003e\u003cspan class=\"\"\u003e for 10 Days\u003c/span\u003e\u003cspan\u003e!\u003c/span\u003e\u003c/span\u003e\u003c/a\u003e\n\u003c/div\u003e\n\u003c/div\u003e\n\u003c/div\u003e\n\u003cdiv class='rp-body'\u003e\n\u003cdiv class='rp-info'\u003e\n\u003cdiv aria-label='Hide resource details' class='rp-hide-info' role='button' tabindex='0'\u003e\u0026times;\u003c/div\u003e\n\u003ci aria-label='Expand resource details' class='rp-expand-info fai fa-solid fa-up-right-and-down-left-from-center' role='button' tabindex='0'\u003e\u003c/i\u003e\n\u003ci aria-label='Compress resource details' class='rp-compress-info fai fa-solid fa-down-left-and-up-right-to-center' role='button' tabindex='0'\u003e\u003c/i\u003e\n\u003cdiv class='rp-rating'\u003e\n\u003cspan class='resource-pool'\u003e\n\u003cspan class='pool-label'\u003ePublisher:\u003c/span\u003e\n\u003cspan class='pool-name'\u003e\n\u003cspan class='text'\u003e\u003ca data-publisher-id=\"30356011\" href=\"/search?publisher_ids%5B%5D=30356011\"\u003eCurated Video\u003c/a\u003e\u003c/span\u003e\n\u003c/span\u003e\n\u003c/span\u003e\n\u003c/div\u003e\n\u003cdiv class='rp-description'\u003e\n\u003cspan class='short-description'\u003eEuropean healthcare professionals say their field is lagging behind when it comes to digitising and sharing patients’ health information. This could be putting lives at risk. “21st-century healthcare is providing 20th-century care,” said...\u003c/span\u003e\n\u003cspan class='full-description hide'\u003eEuropean healthcare professionals say their field is lagging behind when it comes to digitising and sharing patients’ health information. This could be putting lives at risk. \u003cbr/\u003e\u003cbr/\u003e“21st-century healthcare is providing 20th-century care,” said Nigel Hughes, scientific director of Real World Evidence at Janssen Clinical Innovation, who was among the experts who met under the framework of the  European Health Parliament (EHP)  initiative to discuss the future of data in health. \u003cbr/\u003e\u003cbr/\u003eMore than 60 young healthcare professionals from across the continent met in Brussels in early December to discuss the EU health system, the challenges it faces, and the creative thinking that could help tackle them. \u003cbr/\u003e\u003cbr/\u003eElectronic records could save lives \u003cbr/\u003e\u003cbr/\u003e\u003cbr/\u003eHughes’ 26-year-old daughter Rose has Addison’s disease, a long term disorder resulting from insufficiency of adrenal hormones. People with this condition suffer life-threatening adrenal crises, for which they have to be hospitalised. \u003cbr/\u003e\u003cbr/\u003eHughes said: “Last week Rose had an Addisonian crisis, which is potentially fatal. Without fail, every single time, it’s a disaster, because it’s considered a rare disease and nobody knows how to manage it. Except for Rose, who’s had it for 26 years, and she has probably the most experience in the hospital.” \u003cbr/\u003e\u003cbr/\u003eHughes says this situation is worsened for patients due to a lack of digital record-keeping. “There is no such thing as a memory or record in the system to check what happened last time.” \u003cbr/\u003e\u003cbr/\u003eMedical history isn’t digitally shared between European healthcare providers. For Rose, this means that every time she has a medical emergency, she finds herself explaining to healthcare professionals how her crisis was dealt with in the past. \u003cbr/\u003e\u003cbr/\u003eHughes is an advocate for electronic health records, which he says could be used for both care and research. \u003cbr/\u003e\u003cbr/\u003e“Healthcare is not a data-centric industry” \u003cbr/\u003e\u003cbr/\u003eHughes refers to the music app Spotify as an example of how to successfully track users' histories. \u003cbr/\u003e\u003cbr/\u003e“It’s fantastic,” he says, “it gives you your top five tracks, top five artists, and you can even go back every year. It gives you all sorts of statistics, a new playlist to listen to, the whole year of top tracks and so forth.” \u003cbr/\u003e\u003cbr/\u003e“So why can Spotify do that, but healthcare professionals have no idea what happened to Rose last month, last year, or five years ago?” Hughes asked his audience in Brussels. “Because healthcare is not a data-centric industry,” he concludes. \u003cbr/\u003e\u003cbr/\u003eBut managing data accurately is anything but easy \u003cbr/\u003e\u003cbr/\u003eFor all the advantages, turning healthcare into a data-centric industry is not without its perils – mostly because of the difficulties providing a clear legal and regulatory framework. \u003cbr/\u003e\u003cbr/\u003eOne of the disadvantages of tools such as algorithms, supercomputing and artificial intelligence is that there is “a poor amount of representative diverse data, which represents the populations,” says Hughes. Data-driven technologies are only able to learn from the data that they have access to, which means people who don’t see a doctor regularly, or don’t have access to one will not be part of the data that is gathered. \u003cbr/\u003e\u003cbr/\u003e“We are concerned about the bias that some of these algorithms and protocols can have,” says Sarah Collen, senior policy manager at the NHS European Office, “and that’s why the NHS [the UK’s National Health Service] is working on developing a code of conduct on data-driven technologies.” \u003cbr/\u003e\u003cbr/\u003eCollen says developers need to be aware of where their data starts and finishes. “It is a tool that may have a bias against certain groups, whether that's women, children, people with a rare condition, or people from a different ethnic background,” she says. \u003cbr/\u003e\u003cbr/\u003eBut even if data governance is hard, Collen says, “it is a fundamental right and it is our job to work out how to use that data carefully, and in a secure way, to provide quality effective care.” \u003cbr/\u003e\u003cbr/\u003e“All the data we collect is biased” \u003cbr/\u003e\u003cbr/\u003eAccording to Bob Ghosn, head of the Emergency Unit of the International Department at the Red Cross in Belgium, “all the data we collect is biased. But that does not mean that we should not collect it, and certainly, it does not mean that we should not be data-driven organisations. It just means that we need to be aware of this biases and try to mitigate them.” \u003cbr/\u003e\u003cbr/\u003eGhosn says that we tend to think that digital data is more biased than other data, but that nothing proves this to be the case. \u003cbr/\u003e\u003cbr/\u003eMismanaging data has unintended consequences \u003cbr/\u003e\u003cbr/\u003eThe 2013 Ambien scandal serves as an example of the disastrous effects of data mismanagement. The US Food and Drug Administration (FDA) had to reduce the dose of the sleeping pill Ambien for women, after realising their bodies metabolised it slower than men’s. The discovery came after several car accidents that occurred when women who had taken Ambien fell asleep at the wheel, because they had not fully metabolised the drug after the eight hours they were\u003c/span\u003e\n\u003c/div\u003e\n\u003cdiv class='action-container flex justify-between'\u003e\n\u003cbutton aria-expanded='false' aria-label='Read more description' class='rp-full-description' type='button'\u003e\n\u003ci class='fai fa-solid fa-align-left'\u003e\u003c/i\u003e\n\u003cspan id='read_more'\u003eRead More\u003c/span\u003e\n\u003c/button\u003e\n\u003cdiv class='rp-report'\u003e\n\u003c/div\u003e\n\u003c/div\u003e\n\u003cdiv aria-labelledby='resource-details-heading' class='rp-info-section'\u003e\n\u003ch2 class='title' id='resource-details-heading'\u003eResource Details\u003c/h2\u003e\n\u003cdiv class='rp-resource-details clearfix'\u003e\n\u003cdiv class='detail'\u003e\n\u003cdl\u003e\n\u003cdt\u003eCurator Rating\u003c/dt\u003e\n\u003cdd\u003e\u003cspan class=\"star-rating\" aria-label=\"3.5 out of 5 stars\" role=\"img\"\u003e\u003ci class=\"fa-solid fa-star text-action\" aria-hidden=\"true\"\u003e\u003c/i\u003e\u003ci class=\"fa-solid fa-star text-action\" aria-hidden=\"true\"\u003e\u003c/i\u003e\u003ci class=\"fa-solid fa-star text-action\" aria-hidden=\"true\"\u003e\u003c/i\u003e\u003ci class=\"fa-solid fa-star-half-stroke text-action\" aria-hidden=\"true\"\u003e\u003c/i\u003e\u003ci class=\"fa-regular fa-star text-action\" aria-hidden=\"true\"\u003e\u003c/i\u003e\u003c/span\u003e\u003c/dd\u003e\n\u003c/dl\u003e\n\u003c/div\u003e\n\u003cdiv class='detail'\u003e\n\u003cdl\u003e\n\u003cdt class=\"educator-rating-title\"\u003eEducator Rating\u003c/dt\u003e\u003cdd\u003e\u003cdiv class=\"educator-rating-details\" data-path=\"/educator_ratings/rrp_data?resourceable_id=91055192\u0026amp;resourceable_type=Boclips%3A%3AVideoMetadata\"\u003e\u003cspan class=\"not-yet-rated\"\u003eNot yet Rated\u003c/span\u003e\u003c/div\u003e\u003c/dd\u003e\n\u003c/dl\u003e\n\u003c/div\u003e\n\u003cdiv class='detail'\u003e\n\u003cdl\u003e\n\u003cdt\u003eMedia Length\u003c/dt\u003e\n\u003cdd\u003e1:52\u003c/dd\u003e\n\u003c/dl\u003e\n\u003c/div\u003e\n\u003cdiv class='detail'\u003e\n\u003cdl\u003e\n\u003cdt\u003eGrade\u003c/dt\u003e\u003cdd title=\"Grade\"\u003e9th - Higher Ed\u003c/dd\u003e\n\u003c/dl\u003e\n\u003c/div\u003e\n\u003cdiv class='detail'\u003e\n\u003cdl\u003e\n\u003cdt\u003eSubjects\u003c/dt\u003e\u003cdd\u003e\u003cspan\u003e\u003ca href=\"/search?grade_ids%5B%5D=259\u0026amp;grade_ids%5B%5D=255\u0026amp;grade_ids%5B%5D=256\u0026amp;grade_ids%5B%5D=257\u0026amp;grade_ids%5B%5D=258\u0026amp;search_tab_id=1\u0026amp;subject_ids%5B%5D=358379\"\u003eSocial Studies \u0026amp; 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href=\u0026quot;/auth/users/sign_in\u0026quot;\u003eSign in\u003c/a\u003e or \u003ca class=\u0026quot;bold text-danger\u0026quot; data-posthog-event=\u0026quot;Signup: LP Signup Activity\u0026quot; data-posthog-location=\u0026quot;body_link_boclips\u0026quot; data-remote=\u0026quot;true\u0026quot; href=\u0026quot;/subscription/new\u0026quot;\u003eJoin Now\u003c/a\u003e\u003c/div\u003e\" data-title=\"Get Full Access\" data-container=\"body\" rel=\"popover\" tabindex=\"0\" aria-label=\"Play video: Failure to digitise medical records could be putting lives at risk\" href=\"/subscription/new\"\u003e\u003cimg class=\"resource-img img-thumbnail img-responsive z-10 lp-boclips-thumbnail w-full h-full lozad\" alt=\"Failure to digitise medical records could be putting lives at risk\" title=\"Failure to digitise medical records could be putting lives at risk\" onError=\"handleImageNotLoadedError(this)\" data-default-image=\"https://static.lp.lexp.cloud/images/attachment_defaults/resource/large/missing.png\" data-src=\"https://cdnapisec.kaltura.com/p/1776261/thumbnail/entry_id/1_salc72k8/width/250/vid_slices/3/vid_slice/1\" width=\"315\" height=\"220\" src=\"data:image/png;base64,R0lGODlhAQABAAD/ACwAAAAAAQABAAACADs\" /\u003e\n\u003cspan aria-hidden='true' class='flex justify-center items-center bg-white rounded-full w-16 h-16 absolute top-1/2 left-1/2 -mt-8 -ml-8 cursor-pointer z-0 border-2 border-primary drop-shadow-md lp-boclips-thumbnail-playBtn'\u003e\n\u003ci class='fa-solid fa-play text-primary text-3xl ml-1 drop-shadow-xl'\u003e\u003c/i\u003e\n\u003c/span\u003e\n\u003c/a\u003e\u003c/div\u003e\n\u003c/div\u003e\n\u003c/div\u003e\n\u003c/div\u003e\n\u003c/div\u003e\n\u003c/div\u003e\n"}