{"page":"\u003clink rel=\"stylesheet\" href=\"https://lessonplanet.com/assets/packs/css/resources-c03aa079.css\" /\u003e\n\u003clink rel=\"stylesheet\" href=\"https://lessonplanet.com/assets/packs/css/lp_boclips_stylesheets-517835be.css\" media=\"all\" /\u003e\n\u003cdiv data-title='Woman fights Russia law on organ removal consent' data-url='/boclips/videos/5c54cad9d8eafeecae19f5a6' data-video-url='/boclips/videos/5c54cad9d8eafeecae19f5a6' id='bo_player_modal'\u003e\n\u003cdiv class='boclips-resource-page modal-dialog panel-container'\u003e\n\u003cdiv class='react-notifications-root'\u003e\u003c/div\u003e\n\u003cdiv class='rp-header'\u003e\n\u003cdiv class='rp-type'\u003e\n\u003ci aria-hidden='true' class='fai fa-regular fa-circle-play'\u003e\u003c/i\u003e\nVideo\n\u003c/div\u003e\n\u003ch1 class='rp-title' id='video-title'\u003e\nWoman fights Russia law on organ removal consent\n\u003c/h1\u003e\n\u003cdiv class='rp-actions'\u003e\n\u003cdiv class='mr-1'\u003e\n\u003ca class=\"btn btn-success\" data-posthog-event=\"Signup: LP Signup Activity\" data-posthog-location=\"body_link_boclips\" data-remote=\"true\" href=\"/subscription/new\"\u003e\u003cspan\u003e\u003cspan\u003eGet Free Access\u003c/span\u003e\u003cspan class=\"\"\u003e for 10 Days\u003c/span\u003e\u003cspan\u003e!\u003c/span\u003e\u003c/span\u003e\u003c/a\u003e\n\u003c/div\u003e\n\u003c/div\u003e\n\u003c/div\u003e\n\u003cdiv class='rp-body'\u003e\n\u003cdiv class='rp-info'\u003e\n\u003cdiv aria-label='Hide resource details' class='rp-hide-info' role='button' tabindex='0'\u003e\u0026times;\u003c/div\u003e\n\u003ci aria-label='Expand resource details' class='rp-expand-info fai fa-solid fa-up-right-and-down-left-from-center' role='button' tabindex='0'\u003e\u003c/i\u003e\n\u003ci aria-label='Compress resource details' class='rp-compress-info fai fa-solid fa-down-left-and-up-right-to-center' role='button' tabindex='0'\u003e\u003c/i\u003e\n\u003cdiv class='rp-rating'\u003e\n\u003cspan class='resource-pool'\u003e\n\u003cspan class='pool-label'\u003ePublisher:\u003c/span\u003e\n\u003cspan class='pool-name'\u003e\n\u003cspan class='text'\u003e\u003ca data-publisher-id=\"30356011\" href=\"/search?publisher_ids%5B%5D=30356011\"\u003eCurated Video\u003c/a\u003e\u003c/span\u003e\n\u003c/span\u003e\n\u003c/span\u003e\n\u003c/div\u003e\n\u003cdiv class='rp-description'\u003e\n\u003cspan class='short-description'\u003eWhen Elena Sablina's daughter was killed in a car crash in Moscow in January 2014, she was devastated.The next month, Sablina accidentally discovered from a forensic report that six of her daughter Alina's organs, including her heart and...\u003c/span\u003e\n\u003cspan class='full-description hide'\u003eWhen Elena Sablina's daughter was killed in a car crash in Moscow in January 2014, she was devastated.The next month, Sablina accidentally discovered from a forensic report that six of her daughter Alina's organs, including her heart and kidneys, had been removed for transplant, without her knowledge or consent.\"I was shocked that organs were taken from my child without my permission\", Sablina told The Associated Press.\"They just came with a briefcase and took what they wanted\", said Sablina, who said she would not have consented for donating her daughter's organs asked.  \"Who gave them the right?\"Yet all of that was completely legal. Russian law explicitly allows doctors to take organs from deceased patients without informing their families. Sablina sued for damages in five Russian courts and has lost every challenge.In frustration, she recently filed a case with the European Court of Human Rights in Strasbourg, alleging that the removal of her daughter's organs violated several articles of Europe's Human Rights Convention.More than a dozen countries in Europe, including Russia, have a \"presumed consent\" organ donation system, where, in an attempt to boost the number of available organs, the government assumes people will be donors unless they specifically opt out. Others, like England, have a system where people or their relatives must provide permission before anything can be taken.In some other places with presumed consent, including Spain and France, doctors still consult family members before removing any organs, often allowing the wishes of the family to supersede those of the deceased if there is a conflict. In contrast, in countries including Austria and Russia, doctors don't always seek the family's consent before taking organs.Some critics say the Russian law needs to be changed. A recently proposed amendment would require doctors to inform a patient's relatives within 12 hours from the time of their loved one's death of any intention to remove organs or tissue, giving the family time to object. But the new law still does not require doctors to get the family's consent before proceeding with organ removal. It says only that they must be informed.The amendment is still awaiting approval and there is no timeline on when Russian lawmakers might debate its adoption.Still, that would only be a partial solution, critics say, since Russia still lacks an organ donation infrastructure, including a viable way for people to opt out of being donors.After her daughter's accident in Moscow, Sablina and her husband had flown from their home in Yekaterinburg, about 1,400 kilometres (900 miles) east of Moscow, to be with her in the hospital. The doctors told them to prepare for the worst. After five days, she said the doctors said they were too busy to talk, that Sablina and her husband could not see Alina that day and asked them to leave.The following morning, Sablina got a telephone call from a funeral home informing her that her daughter had died. She only inadvertently discovered the organ removal as she reviewed a criminal case file against the driver implicated in the fatal collision. One doctor had removed her daughter's heart while another took her kidneys. Doctors also cut out part of her aorta, her adrenal gland and a piece of her right lung.Sablina sued the hospital and two other institutions involved in the organ removal. Her lawyer, Anton Burkov, said Russian law gives doctors a disturbing amount of discretion.\"Every single act of organ removal is conducted without any permission from the relatives. It's not even hidden\", he said Alexei Starchenko, chairman of Russia's National Patient Safety Agency, said that every hospital that performs organ transplants has its own waiting list, describing the system as \"corrupt\". In most European countries, Starchenko noted there is a centralised waiting list with clear criteria about how organs get distributed, unlike the situation in Russia.Russian lawmakers say the taking of organs without permission is partly based out of consideration for grieving families. In a 2003 ruling upholding the law, the Constitutional Court said it is \"inhumane to put the question of harvesting organs or tissues to a person's relatives at practically the same time as they are notified of his death\".Some experts backed Russia's presumed consent approach, saying it ultimately serves a greater good.Others believe stronger safeguards are needed in Russia.For Robert Cacciola, a transplant surgeon of the Royal London Hospital, the lack of detail in the Russian legislation opens up the potential for more cases like Sablina's to happen.For Sablina, the lawsuit is an attempt to honour her daughter's memory.\"If I don't start to fight against such an inhumane, cruel law, if I just stop and forget about it, I will betray my girl\", she said. \"This law should be changed. The law should be humane.\"Yekaterinburg, Russia - 2 April 20161. Various of Alina Sablina's mother, Elena Sablina, laying flowers at her daughter's grave2. SOUNDBITE (Russian) Elena Sablina, Alina's mother: \"When I started reading the forensic medical report I was shocked that organs were taken from my child without my permission. They didn't inform me about it.\"3. Cutaway of hands4. SOUNDBITE (Russian) Elena Sablina, Alina's mother: \"Some took the heart, others took the kidneys. They just came with a briefcase and took what they wanted and what they liked. I was so shocked. You know it's like goods at the market - I came to take the kidneys, I came to take the heart. And the fact that this was my family member, my loved one. I wouldn't have allowed such manipulation with my child, I simply wouldn't. It was a shock for me, who gave them the right?\" 5. Close up of photo of Alina Sablina6. Various of Elena Sablina looking at her daughter's photos in the photo albumMoscow, Russia - 26 March 20167. Close up of folder reading: (Russian) \"Alina Sablina's case. Part two\"8. SOUNDBITE (English) Antov Burkov, Elena Sablina's lawyer: \"Every single act of organ removal is conducted without any permission from the relatives. It's not even hidden. It's publicly spoken about by the reanimatologists. They say 'we don't have an obligation - according to this law - we don't have an obligation to approach the relatives. We just ignore them'.\"Moscow, Russia - 2 April 20169. Various of exteriors of Moscow City Clinical Hospital No. 1 where Alina Sablina diedMoscow, Russia - 11 April 2016 10. Alexei Starchenko, chairman of Russia's National Patient Safety Agency, talking to journalist11. SOUNDBITE (Russian) Alexei Starchenko, chairman of Russia's National Patient Safety Agency: \"Every hospital that performs organ transplantation has its own waiting list. So this is corruption, it is. Because if we talk about European countries, there is a centralised waiting list where everyone sees the movement of the queue. But when we talk about our system, it turns out that every medical facility has its own waiting list. Who is controlling it? How does it move?\"Moscow, Russia - 2 April 201612. Ambulance being driven in the streetLondon, UK - 13 April 2016   13. SOUNDBITE (English) Roberto Cacciola, transplant surgeon of the Royal London Hospital:\"The legislation there is considered to be, everyone to be considered a donor therefore there is an opt out system. It is also my understanding that the legislation is not very detailed, opening up potential windows to interpretation that can create cases like the one you described.\"Moscow, Russia - 2 April 201614. Various of ambulance being driven in the streetYekaterinburg, Russia - 2 April 201615. SOUNDBITE (Russian) Elena Sablina, Alina's mother: \"If I don't start to fight against such an inhuman, cruel law, if I just stop and forget about it I will betray my girl. Because it shouldn't be left alone, this law should be changed. The law should be humane.\" 16. Computer screen showing photos of Alina Sablina17. Close up of Elena Sablina18. 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